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Nikhil, diagnosed before birth with a congenital heart defect

 

HEART CENTER
Nikhil
Diagnosed before birth,
congenital heart defect

Open heart surgery for an infant may sound shocking, but hearing that a heart problem has been caught in time is music to a parent’s ears.

When local KPRC-TV personality Roseann Rogers became pregnant, she and her husband, Dr. Aashish Shah, like other expectant parents, looked forward to the delivery of a healthy, happy baby. But, at 33 weeks of gestation, Roseann’s obstetrician heard a troubling sound with her baby’s heart and referred her to Texas Children’s Heart Center®.

Roseann and Aashish went to see Dr. Nancy Ayres, fetal cardiologist at the Heart Center, to get an echocardiogram of their baby’s heart. Through ultrasound technology, Ayres found that Roseann’s baby had serious cardiac abnormalities that would require surgical repair soon after birth.

“It was a shock for us to hear this news,” says Roseann. “I never knew that babies could be born with serious heart defects. It was unthinkable that our unborn baby would need open heart surgery within the first day or two of his life.”

Ayres, who sees congenital heart defects on a daily basis in her specialized fetal diagnosis practice at Texas Children’s Heart Center, says, “Parents often experience a grieving process because of the loss of a normal pregnancy. As they learn about their baby’s cardiac defect, they become empowered with knowledge, so they can understand the treatment plan. Early diagnosis is very beneficial to prepare the parents and the Heart Center team to provide the very best patient care.”

The couple also had a lengthy consultation with pediatric heart surgeon Dr. Charles Fraser Jr., chief of Congenital Heart Surgery. He explained that a multidisciplinary surgery, cardiology and neonatal team would be ready and waiting throughout the delivery and the surgery that would follow.

Born at 39 weeks, Nikhil underwent an eight-hour open heart surgery the day after his birth. Fraser reconnected the baby’s lungs to his heart, repaired a narrowed aorta and closed a hole in his heart.

"Nikhil was a very sick baby. He was born with a combination of three serious heart anomalies,” says Fraser. “We treat similarly difficult cases all the time; yet Nikhil’s heart presented unusual challenges.”

“Even though Nikhil’s case was rare, Dr. Fraser was confident that he could repair his heart. He and his wonderful staff supported us through the entire process,” adds Roseann. “We felt confident, too. We chose Texas Children’s for its high rate of success. We know they’re the best at what they do.”

After a recuperative period of several weeks in the cardiovascular intensive care, Nikhil went home with his loving parents to begin living an active baby’s life. Nikhil continues his follow-up care at Texas Children’s Heart Center with pediatric electrophysiologist Dr. Richard Friedman to ensure that his repaired heart does not miss a beat.

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